What We Do

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What We Do 2017-01-04T11:48:45+00:00

Resource Center

The National Spinal Cord Injury Association (NSCIA) Resource Center provides Information and resources to meet the needs of over one million  individuals who have spinal cord injuries and diseases (SCI/D), their families and friends, medical, scientific, community service and business professionals, the media, students, government, elected officials, and the public.

Staffed by Information Specialists (including specialists with spinal cord injuries and a spinal cord injury nurse), the Resource Center provides access — via our toll free Help Line (800-962-9629) and via email — to the most current community living and medical information.

After leading the national effort to serve hurricane survivors with disabilities in the aftermath of Hurricane Katrina, we were recently selected to provide long-term, intensive case management to hurricane survivors.

We also provide emergency preparedness and disaster management training and technical assistance to people with mobility disabilities nationwide.

WWW.Spinalcord.org

With 6000 pages of content and new content regularly added, our web site has grown to be a leading source of news and information for the SCI/D community, and the larger disability community.

SCI Life

SCILife, our bi-monthly national newspaper and flagship publication, is filled with issue-driven articles and news of interest to the SCI Community and the larger disability community.  SCILife is a popular showcase for advertisers with products of value to our members.

E-Newsletter

Through NSCIA  eNews, we are committed to educating our members, and the community at large, about issues that impact people with SCI/D, their families and their related service providers. Originally made possible by a Medtronic Foundation grant, our free, monthly NSCIA eNews  reaches an increasing number of people in the SCI Community, and we are working toward weekly publication.

Peer Support Network

Our extensive Chapter and Support Group Network connects individuals with SCI/D.  This mutual support helps and motivates those new to SCI/D to seek opportunities to maximize the quality of their lives and prevent secondary conditions.

In Touch With Kids

This program was developed to let young people (up to 18 years old) with SCI/D know they are not the only kids in the world living with spinal cord injuries.  It connects them with other kids having similar experiences, fears, hopes & dreams.

It’s also an innovative and supportive way to let parents talk to other parents about raising a child with SCI/D.

In the past, the program included a pen-pal directory to connect children by mail.  This program is currently seeking funds to redesign and re-launch, utilizing the NSCIA website, the internet, and appropriate technology to encourage children and families to communicate with each other electronically

The  P.  E.  A.  C.  E.  Project

The P.E.A.C.E.  project will work nationally, to diminish the incidence of Violently Acquired Spinal Cord Injury (VASCI) among a targeted population of African- and Hispanic-Americans, primarily males, ages 15-25, and to provide support and assistance for living and coping to those who have been shot and paralyzed.

This program was initially funded by the Medtronic Foundation and Paralyzed Veterans of America, and is now seeking funding to re-activate and expand this best practice model.  P.E.A.C.E stands for Prevention, Early Intervention, Assistance, Counseling, Education and Employment.

Positive Prevention

NSCIA is committed to community education about spinal cord injury, and to information delivery that helps people understand that those with spinal cord injuries and other disabilities can and do lead rich, full, active lives.
This program, balancing a focus on prevention with positive images about living with a disability, is planned for national availability.

New Injury Initiative

NSCIA is unique in its “life-long” view of providing resources from the day of injury through a long and full life with SCI.  We are committed to developing and implementing a New Injury Initiative that would allow us to have direct contact with all 30 newly injured individuals each day, and their families, within the first few days of injury.