The Spoon Theory, a way to explain what it feels like to live with chronic illness, is wildly popular with many who have MS. It is the brainchild of Christine Miserandino, who has lupus. While lunching at a restaurant, a friend asked her what that feels like, and at a loss for … [Read more...]
Participants Needed for National Study on Spasticity
Advanced Focus--a market research company based in New York City--is currently working on a nationwide project specifically aimed at people living with spinal cord injuries or multiple sclerosis that have been diagnosed by a physician as having spasticity issues (extreme muscle … [Read more...]
Mobility Survey for People with SCI/D
Letter of Invitation Study Title: The impact of mobility assistive technology devices on participation for individuals with disabilities Dear Assistive Technology User, As students in the Occupational Therapy department at Belmont University, we (Jordan … [Read more...]
Survey to Improve Your Access to Wheelchairs and Medical Equipment
Please take part in a short survey about your access to wheelchairs and medical equipment. Your feedback will help us advocate in Washington, DC to change policies that affect your mobility and independence, such as Medicare’s bidding program. This program not only … [Read more...]
Finding a Good Neurologist or Neurology Clinic
Finding a good neurology practice can make all the difference when it comes to accessing everything from the most up-to-date advice on which meds (if any) to take, to getting help transitioning from cane to walker to wheelchair. Spinal Cord Central suggests the following two … [Read more...]
Alemtuzumab Controversy
The emerging alemtuzumab controversy that’s bubbling up in the United Kingdom is a story that’s become all too common in the MS drug marketing world. A medicine is hailed as “most effective,” is approved for use by people with MS, and then is rendered … [Read more...]
Nanoparticle Breakthrough
Nanoparticles delivering an antigen that tricks the immune system into attacking the antigen rather than itself may sound like a futuristic plot device for a science fiction movie, but it’s real and happening now. A Northwestern University study published on Nov. 18 in … [Read more...]
Tcelna Heads to Phase IIb
Tcelna, a potential T-cell therapy for secondary-progressive MS as well as relapsing-remitting MS, is gearing up for its Phase IIb clinical trials. According to Opexa Therapeutics, Tcelna is the first-ever personalized T-cell therapy for MS, which means that the treatment will be … [Read more...]
MIS416 Gets Closer to Trials
On Sept. 3, 2012 Innate Immunotherapeutics announced that it has begun raising $10 million in order to test MIS416, a potential therapy for primary and secondary progressive MS, in Phase IIb clinical trials. MIS416 is thought to work by re-regulating a person’s immune … [Read more...]
MS-Related Shivers are Hypothermia
If you’re one of the many people with MS who get the shivers when the weather starts to change, please take them seriously. Whether the shivers or the chills, if the reaction occurs body-wide, in only one half the body, or just a limb or two, it ought to be dealt with right … [Read more...]
