The National Spinal Cord Injury Association (NSCIA) Resource Center provides information and resources to meet the needs of over one million individuals who have spinal cord injuries and disorders (SCI/D); their families and friends; the medical and scientific community; service and business professionals; the media; students; government; elected officials; and the public.
Staffed by Information Specialists (including specialists with spinal cord injuries and a spinal cord injury nurse), the Resource Center provides access–via our toll free Help Line (800-962-9629) and via email–to the most current community living and medical information.
After leading the national effort to serve people with disabilities who survived Hurricane Katrina, we were recently selected to provide long-term, intensive case management to this population.
We also provide emergency preparedness and disaster management training and technical assistance to people with mobility disabilities nationwide.
With 6,000 pages of content and new content regularly added, our website has grown to be a leading source of news and information for the SCI/D community, and the larger disability community.
Life in Action
Life in Action, our bi-monthly membership magazine, is filled with issue-driven articles and news of interest to the SCI/D community and the larger disability community. It provides our readers active-lifestyle information, peer connection and advocacy. Life in Action is also a popular showcase for advertisers with products of value to our members.
Through NSCIA eNews, we are committed to educating our members and the community at large, about issues that impact people with SCI/D, their families and their related service providers. Originally made possible by a Medtronic Foundation grant, our free, monthly NSCIA eNews reaches an increasing number of people in the SCI/D community, and we are working toward weekly publication.
Peer Support Network
Our extensive Chapter and Support Group Network connects individuals with SCI/D. This mutual support helps and motivates those new to SCI/D to seek opportunities to maximize the quality of their life and prevent secondary conditions.
In Touch With Kids
This program was developed to let young people (up to 18 years old) living with SCI/D know they are not the only kids in the world living with disabilities. It connects them with other kids having similar experiences, fears, hopes and dreams.
It’s also an innovative and supportive way to let parents talk to other parents about raising a child with SCI/D.
In the past, the program included a pen-pal directory to connect children by mail. This program is currently seeking funds to redesign and re-launch, utilizing the NSCIA website, the internet, and appropriate technology to encourage children and families to communicate with each other electronically.
The P. E. A. C. E. Project
The P.E.A.C.E. project will work nationally, to diminish the incidence of Violently Acquired Spinal Cord Injury (VASCI) among a targeted population of African- and Hispanic-Americans, primarily males, ages 15-25, and to provide support and assistance to those who have been shot and paralyzed.
This program was initially funded by the Medtronic Foundation and Paralyzed Veterans of America, and is now seeking funding to re-activate and expand this best practice model. P.E.A.C.E stands for Prevention, Early Intervention, Assistance, Counseling, Education and Employment.
NSCIA is committed to community education about SCI/D, and to information delivery that helps people understand that those living with disabilities can and do lead rich, full, active lives. This program–balancing a focus on prevention with positive images about living with a disability–is planned for national availability.
New Injury Initiative
NSCIA is unique in its “life-long” view of providing resources from the day of injury through a long and full life with SCI. We are committed to developing and implementing a New Injury Initiative that would allow us to have direct contact with all 30 newly injured individuals each day, and their families, within the first few days of injury.