National Spinal Cord Injury Association

a program of United Spinal Association

 
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Our mission is to provide active-lifestyle information, peer support and advocacy that empowers people living with spinal cord injuries and disorders (SCI/D) to achieve their highest potential.

The Benefits of Complex Rehab Technology

New video shows the real world benefits of matching people with mobility equipment that meets their unique needs.

So what exactly is complex rehab technology?

Basically, it includes mobility devices such as manual and power wheelchairs that are professionally tailored to fit a person’s medical and functional needs.

No matter what disability someone may live with, whether it’s spinal cord injury or traumatic brain injury, nobody falls under the same umbrella of needs. We are all different, and that’s a good thing.

Some folks in DC do not recognize the positive impact that complex rehab technology has on many lives. They’d rather group everyone into one category. And why not, it’s easier–except for those who must learn to live with equipment that strips them of their independence and health. A wheelchair that works for one person, doesn’t work for everyone else.

For people who don’t use wheelchairs, think of it this way. How would you feel if you were told you couldn’t get any other vehicle other than a 76 Chevy Chevette that broke down every few miles? There is no doubt, some people out there are wheeling around in equipment that very much feels like 76 Chevettes, but the effect on their lives is much worse than just driving around in a crappy old car.

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Fortunately, the National Coalition for Assistive and Rehab Technology (NCART) has released an educational video explaining the benefits of complex rehab technology.

Far from the run-of-the-mill preachy production, the video offers up perspectives from individuals who use complex rehab technology for their health and independence, physicians that prescribe it, and consumer organizations like United Spinal Association that work to protect access to it.

Click the play button above to check it out.

NCART works with consumers, clinicians and physicians along with federal, state and private policy makers and agencies to establish and maintain a viable coverage and reimbursement environment. Another way of saying it: They push buttons and knock on doors to ensure people get the proper mobility equipment–without having to pay for it on their own or get a headache trying.

After watching the video, I recommend you check out NCART’s website for additional info on complex rehab technology that may be useful in your own fight to get the mobility equipment that’s right for you.

Also be sure to visit United Spinal’s UsersFirst program, which also advocates for greater access to appropriate wheelchairs, mobility scooters and seating systems for people with disabilities. They are looking for some new blood to join the movement to help change archaic policies.

Tom Scott
Web Editor

Iowa Rec Clinic Going Strong

When was the last time you went skiing, hunting, golfing, bowling and off-roading in the same day?

If you answered never, you’ll have a chance to rectify that glaring bucket list omission at this year’s 7th Annual Adaptive Sports

A True Taxi Tale

A visitor has posted their grassroots issue.On June 19, 2007, my spouse and I boarded an Air Canada flight at New York City’s LaGuardia Airport for what we thought was a day trip to Montreal. I’m a quadriplegic and my injury is at the sixth cervical vertebrae.

The purpose of this trip was my delivery of a presentation entitled “Advocacy for Accessible Taxis in New York City” at the 11th International Conference on Mobility and Transport for Elderly and Disabled Persons, or more simply, TRANSED 2007. I was one of the organizers of the New York City Taxis For All Campaign, and I was fortunate to chair this coalition of groups and individuals from 1996 through 2006.

Since my ability to transfer had diminished over the years, I undertook some research and I found several companies that provided wheelchair-accessible taxi service in Montreal. I reserved a trip from the airport to the conference site, as well as an early evening return trip to the airport for our flight home.

Our trip to Montreal was quick and uneventful, and after we passed through Customs, I called the taxi company to report my arrival. Within 10 minutes, an accessible minivan with a wheelchair seating space and tie-downs in the front passenger seat area had arrived. Our driver, who spoke very little English but enough so that we understood each other, secured me in the wheelchair area quickly, and we were en-route to the conference site.

On our return trip to the airport that evening, we had the same taxi driver and we reached our terminal for our flight home with plenty of time to spare. Everything’s good, right? Unfortunately, shortly after we reached the airport, Air Canada announced that it was forced to cancel all flights to New York City for the remainder of the evening because of a huge thunderstorm in the middle of the state.

That’s when my resourceful wife told me “not to worry” since she had the foresight to bring a few essential “quad” items in her handbag, and we both made a beeline for a telephone to call our taxi company once again. We explained our situation to the dispatcher and within 45 minutes, the same driver was loading me into the same accessible cab.

I spoke two words to the driver: “Holiday Inn,” and shortly we arrived at the Holiday Inn-Montreal Airport. They even had an accessible room available. We had a decent dinner at the hotel and a good night’s sleep and as planned, the same driver and accessible taxicab picked us up the next morning and drove us to the airport for a different return flight home.

The moral of this true story? Really, there’s a bunch of them! On June 19 and 20, 2007, the Montreal company with accessible taxis provided my wife and I with four on-demand, door-to-door trips that I remember being safe, comfortable and affordable. Even the best public transportation entity in the country can’t do that. What’s more, accessible taxis are a fast mode of travel since they do not make stops like buses and trains. And remember, I was on a business trip, and if more persons with disabilities are to enter the workforce in the years ahead, we must have a way to get to and from the workplace, and to move around our communities if that’s what a job requires.

Share with us other benefits of the greater availability of wheelchair-accessible taxis that you can envision in your community.

Terry Moakley
United Spinal’s Accessible Taxi Advocate

Life in Action Editor’s Note: What’s your gadget?

Ian Ruder, Editor, Life in Action

Ian Ruder, Editor, Life in Action

A much wiser man than I once dubbed disability the grandmother of invention. If you live with a disability, or know someone who does, you know how true this is. And though no one knows for sure who invented the first wheelchair, I suspect it was a creative soul who was frustrated by his own lack of mobility. His innovative solution opened up a world of possibilities for other individuals in similar situations.

Hundreds, if not thousands, of years later, we can look back on a long history of revolutionary innovations that have not only improved the lives of people with disabilities, but have actually made many people’s lives possible. From simple inventions like appliance-holding cuffs, to the most complex ones, like the medical techniques that allow many people who sustain spinal cord injuries to survive, the promise of innovation is all around us.

I hope that this issue removes some of the mystery around innovating and inventing and gets you to realize that you have everything required to create the next life-changing gadget
or gizmo. No one knows the needs of people with spinal cord injuries better than people with spinal cord injuries. As one paraplegic I interviewed said, “Things that work for me work for a lot of people.” Indeed. If you have a problem, someone else likely does too, and if you have a solution, you can be sure they will be glad to know. Get your idea out there, and see what people think. Maybe it’s a hit, and you have the next iPad. Maybe you have the next iBot. Either way, you’re contributing to the rich history that has given so many options to the disability community. And who knows, you might get rich, too.

Paying It Forward

I lived through an absolutely incredible week recently.

Late in the day on Tuesday, December 20th, I received a phone call from my friend and work colleague of more than 31 years, United Spinal Association Senior Vice-President Jim Weisman. He was close to home on his return trip from Albany where he helped to negotiate a wheelchair-accessible taxi bill for New York City. While it still has to be ratified by the State Legislature next month, Jim told me over the telephone that New York Governor Andrew M. Cuomo was the key person in the negotiation process.

Great work, Jim. And thanks, Governor Cuomo, for understanding that moving around Manhattan in a yellow cab is something that should be available to ALL citizens and visitors.

The agreement is fairly complex so I’m going to break it down to numbers that I can easily understand. Probably sometime in 2012 or early 2013, there could be up to 2,000 new yellow taxi medallions sold at public auction. All would have to be used only on wheelchair-accessible yellow taxis. Eventually, over a reasonable period of years, the entire yellow taxi fleet here will become accessible to all people with disabilities.

New York City has five “boroughs” (known elsewhere as counties). Our yellow taxis operate mainly in the borough of Manhattan south of 96th Street, and to and from Kennedy and LaGuardia airports. The taxis that operate in the northern part of Manhattan, the Bronx, Queens, Brooklyn and Staten Island are known as livery vehicles.

So, the aforementioned agreement also establishes a new type of livery vehicle called a “street-hail livery.” These vehicles, expected to number 18,000 over a period of time, will require a special operating permit that will allow them to both pick up street hails and accept requests for service via radio dispatch.  A total of 20 percent of these vehicles, or 3,600 such vehicles, will need to be wheelchair-accessible street-hail liveries.

Later in the evening of December 20th, I searched the Governor’s website and I found a release used for the earlier press conference, with a link to a video of it. Jim Weisman was the first speaker, and his was the shortest and best speech. He thanked the Governor for his hands-on involvement; said that this was a good agreement for the world-class city that is New York City; and, concluded by mentioning that it will benefit disabled people, veterans and the aging population.

I might be putting words in my friend’s mouth, but I don’t think so. It doesn’t matter who you are now. If you are a person with a disability today, veteran or non-veteran, the advantage of an accessible taxi and livery system in New York City is obvious. And if you are not a veteran or you don’t have a disability, and you live here or you don’t live here, if you live to be an aging person, you may one day need on-demand access to taxi and livery service, too. It is the beginning of the aging of America.

One of the two other events that happened last week is that I changed age, so now I’m part of all three populations noted above.

Last but not the least, on Friday, December 23rd, the judge in a U.S. District Court case in Manhattan, in which United Spinal Association is one of many plaintiffs, granted our motion for summary judgment against the Taxi & Limousine Commission under one section of Title II of the Americans with Disabilities Act, noting in part that persons who must use wheelchairs or scooters “are not provided meaningful access to the benefits of New York City taxicab service.” To me, this decision adds great credibility to the new State bill agreement.

Paying it forward? I want everybody in this country with a disability, or who works for or volunteers with an organization of persons with disabilities or veterans or aging Americans, to know about the agreement detailed above. If it happened here, it can happen anywhere. Pay it forward with me.

Terry Moakley
United Spinal’s Accessible Taxi Advocate

Further Reading: Judge Rules NYC Taxis Violate Americans with Disabilities Act

The Benefits of Complex Rehab Technology

#video-container_wrapper { margin:auto; } New video shows the real world benefits of matching people with mobility equipment that meets their unique needs. So what exactly is complex rehab technology? Basi[...]

Webinar to Address Capitol Hill Attacks on Medicaid

Join United Spinal Association's Public Policy Staff for a Free Webinar to Address Attacks on Medicaid Services and Supports from Capitol Hill.   Date: Thursday, January 26, 2012 Time: 2:00 PM - 3:15 PM EST Sp[...]

Join the Fight to Stop Oklahoma Medicaid from Cutting Catheters

Time is running out to fight back against Oklahoma Medicaid, which has proposed to drastically cut the amount of hydrophilic catheters and closed system catheter kits its recipients can obtain per month. Currently, Ok[...]

Ohio Member Casey Followay: A Champion On and Off the Track

  At age 14, Casey Followay has already won enough medals and trophies in track, archery and swimming that he could probably cover all the walls of his bedroom and still have some left for the mantle. But ins[...]

Survey on Physical Activity and Exercise

The Rehabilitation Research Training Center (RRTC) on Secondary Conditions in the Rehbilitation of Individuals with SCI is conducting a brief 9-question survey on physical activity and exercise. We kindly ask that yo[...]

A True Taxi Tale

On June 19, 2007, my spouse and I boarded an Air Canada flight at New York City’s LaGuardia Airport for what we thought was a day trip to Montreal. I’m a quadriplegic and my injury is at the sixth cervical vertebrae.[...]

TSA Creates Helpline for Travelers with Disabilities

Airline travel for people with disabilities, whether you're a wheelchair user or living with multiple sclerosis (MS) or other medical conditions, can sometimes be a big hassle. Ok, ok--it's always a big hassle. For mo[...]

A Chapter Rises in Houston

Four months ago the idea of a Houston-area chapter of NSCIA was just an idea in a few people’s heads. Today the Texas Gulf Coast Chapter is up and running, thanks to an intensive effort by Rafferty Laredo, the chapter[...]

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a program of United Spinal Association
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